Post-Polio Health International (formerly Gazette International Networking Institute) established The Research Fund (formerly The GINI Research Fund) in 1995 dedicated to “seeking scientific information leading to eventual amelioration of the consequences of poliomyelitis and/or neuromuscular respiratory diseases“.
The Research Fund with a corpus of $500,000 awarded its first grant from the interest in the fall of 2000.
The initial modest grants will help support researchers, scientists, and clinicians worldwide to investigate the cause(s), treatment, and management of post-poliomyelitis and neuromuscular respiratory disease.
As it approves grants, PHI will foster new innovative research – both basic science and clinical – that will result in improved quality of life for people with disabilities, as well as support valid ongoing research.
A panel made up of peers and people with disabilities will review all grant applications that meet established requirements for respiratory research or post-poliomyelitis research. This panel’s recommendations will be reviewed by the PHI’s Board of Directors, who will make the final funding decisions.
Ventilator Users' Perspectives on the Important Elements of Health-Related Quality of Life
The first Award (2001) - The final report (September 2002) presents the perceptions of the health-related quality of life of 26 individuals living in the community (Toronto and Edmonton, Canada) with long-term use of home mechanical ventilation due to neuromuscular disability or traumatic injury. (PDF file, 124 pages, 450 KB)
Women with Polio: Menopause, Late Effects, Life Satisfaction and Emotional Distress
The second Award (2003) - The final report (May 2004) by the team of researchers from the University of Michigan in Ann Arbor, Michigan, presents the results of their nationwide study of the effects of aging on the lives of polio survivors comparing the problems of men and women. (PDF file, 53 pages, 753 KB)
Regulatory T Cells as a Biomarker of Post-Polio Syndrome
The fourth Award (2007) - Disease biomarkers are measures of biological parameters indicative of a disease process. They are useful because they can assist in diagnosis or provide a means of monitoring the disease as it progresses and the effectiveness of different therapies. The study conducted at the University of Arkansas for Medical Sciences was, therefore, designed to answer a simple question: Are there signs or changes in the immune system (that is an immunological signature) that can be linked to post-polio syndrome (PPS)?
Persisting Noninfectious Genome Fragments of Poliovirus in PPS Patients
The fifth Award (2009) - The team from University of Insubria, Varese, Italy, led by Antonio Toniolo, MD, PhD, Professor of Medical Microbiology and Virology worked to complete the sequencing of the genome of persistent fragments of poliovirus strains and compare them to wild-type polioviruses.
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